Living with Dementia - What Information Do People Need
Summary:
A total of 15 people were spoken to with 50 collated comments. The key findings from the engagement are:
- People would like information at the time of diagnosis and at periodic times following this as changes in conditions and symptoms arise.
- Family members may need more information that those with the diagnosis especially regarding legality, respite and transport.
- Face to face delivery of information is still very popular due to the ability to ask questions however paper format is good as an additional way to receive information and at times may be more appropriate.
- Technology could be utilised further to help share information.
- Information should be available at any service or point of support. It was also highlighted that general spaces such as libraries would be useful spaces for people to gather information.
Conclusion:
There is lots of information but at times the amount provided can be overwhelming or seem inappropriate or not suited to the person receiving it. More care should be taken over what information is required by individuals and there is differently an appetite and need for information regarding power of attorney, respite, transport and other legal issues.
Although it was acknowledged that technological advances mean there are applications that can help people manage conditions and offer a source of information it was still deemed most suitable for information to be supplied in a paper format with the addition of face to face conversations with apps being used as an additional support/method.
The report was shared with Bolton CCG, Greater Manchester Mental Health NHS Foundation Trust, Bolton NHS Foundation Trust and Bolton Dementia Support. Details of their responses can be found in the full report by clicking on the link below:v
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